I am the mother of Jack, currently 10, who has been battling Perthes Disease for over 2 years. He was officially diagnosed in January of 2009 but I believe he started much sooner than that. I have been keeping a blog for him since the end of June, 2009 when he went in for an arthrogram and then started 6 weeks of traction. We've been through crutches, physical therapy, traction, a wheelchair, a femoral osteotomy and a body cast. His blog, Jackinator, has all the details of his case, at least from my perspective. After a mother from Turkey found his blog and contacted me, that gave me the idea of starting a blog for kids. There are support groups out there for parents and so I thought something for kids would help, considering we had never even heard of Perthes Disease until all of this happened. We were fortunate that a boy in our town who we would always see swimming at the Y (now we know why:) had had Perthes and so we got a lot of insight from them. Knowledge is power and I'm hoping the kids can learn from each other to make this a bit easier on everyone.
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Happy Blogging and I wish you a Speedy Recovery!
-Michele
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